14 09, 2009

A Big Decision at Fourteen

By |2018-08-17T06:29:54+08:00September 14th, 2009|Life with NF|0 Comments

It was the summer of 1987. My uncle and I were seated in one of the small clinical examination rooms of Shriner's Hospital for Crippled Children in Los Angeles, CA. It was my second trip to the US. The first was a couple of years ago -- when  stayed about a year in the US [...]

14 08, 2009

What does the future hold?

By |2018-08-17T14:28:52+08:00August 14th, 2009|Life with NF|1 Comment

Growing up as a kid with NF, I'm sure my parents had this nagging question inside their heads at one time or another: "Will he grow up to be normal?" I'm guessing that the  "growing up to be normal" question isn't really exclusive to parents whose kids have NF, other disabilities or  special needs. It's [...]

23 07, 2009

Dealing with the Pain

By |2018-08-17T06:49:27+08:00July 23rd, 2009|Life with NF|3 Comments

I have never been able to remember when I first experienced the pain associated with my NF. Perhaps it was because I always had a high-level of pain tolerance even when I was very little.  But as I grew older, my left leg -- on which had numerous nerve endings had formed -- had become [...]

6 07, 2009

Center of Attention

By |2018-08-17T19:27:10+08:00July 6th, 2009|Life with NF|0 Comments

Because of neurofibromatosis, my left leg was malformed. It was longer than my right leg and was continuously growing faster. It was one of the first things noticed by my parents before they found out that was related to neurofibromatosis: whenever I walked or ran, there was a good chance that I'd trip over myself. [...]

29 06, 2009

Being Brave at Four

By |2018-08-17T19:23:47+08:00June 29th, 2009|Life with NF|0 Comments

"What is going to happen?" I had wondered to myself. I was 4-years old and I was going to the hospital operating room. They told me that the doctors were going to take a look at something inside my leg. I was trying my best to put my bravest face on. My parents had assured [...]